04/05/2023

What to do while waiting for a diagnosis – “wondering what if”

ME / CFS and Long Covid Resources

Web sites

- KidsHealth https://www.kidshealth.org.nz/recovering-covid-including-long-covid

- Long Covid kids https://www.longcovidkids.org

- Long Covid Support Aotearoa https://longcovidsupport.co.nz/

- ME/CFS Canterbury group https://www.mecfscanterbury.nz/#/ Email: info@mecfscanterbury.nz

- ME Support http://www.mesupport.org.nz/longcovidhelp

- Raising Children network https://raisingchildren.net.au/guides/a-z-health-reference/cfs

YouTube clips

- Dr Rae Duncan https://youtu.be/ydRlZ-k8A7Y NB Rae Duncan is a UK researcher, cardiologist, children. This a 5 minute video - a mixture of science of long COVID and some heart felt practical and good emotional advice too – well worth watching!

- Prof Warren Tate https://youtu.be/GZh_dv15gvg

Papers

- Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in Adolescents: Practical Guidance and Management Challenges - Katherine Rowe https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9827635/

Blog, Podcasts, TED talk

- Toms blog - The Long Hauler Sunbeam https://thomasharris.substack.com/

- Podcast https://www.goodfellowunit.org/podcast/myalgic-encephalomyelitiscfs

- TED talk https://www.youtube.com/watch?v=Fb3yp4uJhq0

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