Listening to Families Videos

Anna Richards (Dietitian) and Sophie Hall (Paediatric dietitian) note that the presentation can be very wide and varied and that is why it is often missed. They identify some of the common presentations.

Anna Richards (Dietitian) explains the genetic link. She notes that there is a 10% chance of developing Coeliac from a first degree relative.

Sam shares how she and her family manage gluten. Anna Richards (Dietitian) talks about the coloured dot strategy for managing within a family.

Sophie Hall (Paediatric dietitian) notes that approx 50% of newly diagnosed people will have symptom resolution at 6 mths. Sam explains that the journey took 12mths and shares her story.

Sam talks about the importance of being supported by friends and being prepared. She talks about engaging with restaurants. Sam also talks about the great work that Coeliac NZ is doing in raising awareness.

Sophie Hall (Paediatric dietitian) notes that you either coeliac or not. Sam notes that regardless of symptoms coeliac disease needs to be taken seriously

Sophie Hall (Paediatric dietitian) explains the steps to diagnosis starting with the General Practitioner. Anna Richards (Dietitian) talks about the two options – blood work and biopsy. She notes the importance of a formal diagnosis.

Anna Richards (Dietitian), Sam and Sophie Hall (Paediatric dietitian) talk about living in the real world not in a bubble. They discuss the importance of finding a balance.

Sam and Sophie Hall (Paediatric dietitian) note the importance of language – stating that you have coeliac disease rather than being gluten free.

Sophie Hall (Paediatric dietitian) talks about the resources available from Coeliac NZ. Anna Richards (Dietitian) notes the value of the Coeliac Facebook page.

Anna Richards (Dietitian) talks about the private and public pathways post diagnosis to get to see a dietitian. Sophie Hall (Paediatric dietitian) notes that Dietitians NZ website has information about dietitians.

Anna Richards (Dietitian) and Sophie Hall (Paediatric dietitian) note that children need to have been eating gluten for 8 weeks prior to testing for coeliac disease.

Anna Richards (Dietitian), Sam and Sophie Hall (Paediatric dietitian) share their key messages from the discussion.